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Important communication from Ionis to the Lafora community

Posted on 11 September 202411 September 2024 by Tiziana D'Izzia

We are excited to share some news of great scientific and clinical relevance. Ionis Pharmaceuticals has announced the completion of a licensing agreement for ION283, their investigational drug for the treatment of Lafora disease.

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Riconoscimento di un Traguardo Storico

Posted on 11 September 202422 December 2024 by Tiziana D'Izzia
Riconoscimento di un Traguardo Storico nella Ricerca sulla Malattia di Lafora Con immensa gioia e profonda gratitudine, ci accingiamo ad annunciare un traguardo atteso per anni, segnato da un’ardente[...]
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FIRST GOAL ACHIEVED!

Posted on 12 March 202220 August 2024 by Tiziana D'Izzia
We have reached our first goal. Thanks to the many donations received, Tempo Zero has raised the first 50,000 euros, which will allow us to launch a specific research grant for Lafora disease in the s[...]
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Make your bank transfer payable to: Tempo Zero ODV

IBAN IT38 Y030 6909 6061 0000 0183 551

To receive the donation certificate, remember to indicate your name, surname and email address in the reason for payment.

TEMPO ZERO ODV

Help us stop lafora disease

TEMPO ZERO ODV - Non-profit association created to help research on Lafora Disease and to help families affected by this disease who no longer have time

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