My name is Romina, and I am Giorgio’s mother. Giorgio is a 15-and-a-half-year-old boy. At the age of 11 and a half, he had his first tonic-clonic seizure, something he had never experienced befo[...]

We are learning about Lafora Disease through the stories of girls like Martina and Carola who live with it every day. Unfortunately, there are also girls who have faced this disease, fought against it[...]

There are only 200 people in the world like Carola, 16, from Fiumicino, and 30 in Italy. Two hundred children and adolescents are condemned because there is still no cure for Lafora disease, a genetic[...]