We’ve reached a milestone that once felt out of reach:
one million euros raised.

Thanks to this extraordinary wave of trust, six children have been enrolled in the first clinical trial in the world for Lafora disease, now underway in Dallas.

Six families rediscovering hope. Six lives fighting with renewed strength.

But now we must do even more.
We urgently need 500,000 euros.
Without this amount, four more children will not have access to the treatment.
And we cannot accept that.
Not now. Not after all this.

We owe it to those who already believed.
We owe it to those who already gave.
But most of all, we owe it to our children.

This drug does not stop here.
In preclinical studies, it showed real efficacy.
And now, in the ongoing clinical trial, four children have already received their infusion.
No side effects. No adverse reactions.
Just clear, powerful data: it’s safe. It’s real.

But it’s still only a trial.
And our goal is far greater.
We want this therapy to reach every child, in every corner of the world.
Because Lafora disease shows no mercy.
It strikes, it destroys, it condemns.
And our children suffer, suffer, and suffer.

Now we have a path.
And we must walk it to the very end.
Together. Step by step.

We’ve lit a spark of hope.
Now we must keep it alive.

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Now. In TempoZero.

Every second counts.
Every euro is a step.
Every child is a life.
And no one must be left behind.

Thank you. Truly.