OUR GOAL
SUPPORT
THE RESEARCH
We need your help to raise the necessary funds to initiate the Phase 1/2 clinical trial (safety and efficacy) of a new ASO drug specifically created for Lafora disease.
1.5 MILLION DOLLARS.
10 PATIENTS.
2 YEARS OF TREATMENT.
The clinical trial requires two years during which families will need to bring their children to Dallas every three months. In addition to travel and accommodation costs, parents will have to cover the cost of the trial itself, which has been estimated at $150,000 per patient for two years of treatment.
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